Tag Archives: emotional resilience

Blogging, D.B. Jackson, David B. Coe

Checking In and Saying Thanks

It’s been a little over three weeks since Alex, our older daughter, lost her two and a half year battle with cancer. It feels like more. It feels like less.

We have had celebrations of her life in New York City and in our little home town in Tennessee. Both were crowded and loud and fun. Both were filled with laughter and tears, music and good food, and lots and lots of remembrances of our brilliant, funny, beautiful child. (Yes, she was 28. Still, she will always be our child, our first baby, our darling little girl.) We have been overwhelmed by the love shown us by friends and family near and distant. By the generosity — spiritual, emotional, material — of so many. Cards, gifts, flowers, food, phone calls, and texts. And yes, comments by the hundreds on social media posts. We are humbled and grateful beyond words for every expression of support and sympathy. Thank you a thousand times.

At this point, the celebrations of her life are over. Guests from out of town have left. Erin has gone back home. Nancy is starting to work again, and I am gearing up to do the same. We are, I suppose, stepping back into “normal” life. Except there is nothing normal about it, and in ways that truly matter, in ways that will remain with us for the rest of our lives, it will never really be normal at all, ever again.

How do we navigate this path? I honestly don’t know. It’s a terrible cliché, but I guess we do so one day at a time, one moment at a time, one breath at a time. In and out. Take a step. And breathe again. Rinse, repeat.

It’s a good thought, I suppose. It feels inadequate to the task. Already, in just these few weeks, I have reached for my phone more times than I can count, intending to text Alex, or check for a text from her. I want desperately to hear her voice, to know once again the music of her laughter, to ask her questions about her work, or the new restaurant she’s tried out most recently, or the music she currently has on looped-play. And each time, reality kicks me in the gut.

I watch TV and am shocked by the number of times some character, on-screen or off, is said to have cancer. There is no escaping it. We hear news of a celebrity passing away — cancer again. News of lost children assaults us from all corners of the globe, wars claiming their collateral toll, gun violence here in the States stealing more innocent young lives. These tidings were always awful to hear, but they were abstract in some way. Anonymous. Not anymore. Children are lost. Parents grieve. We are members of a club no parent wants to join.

Alex’s death hit so many people so hard, and in one sense that was a product of her amazing personality, her magnetism. But I am wise enough to understand that there is far more to it than that. The outpouring of love and grief from her friends comes in part from the simple truth that, for many of them, she is the first of their contemporaries to die. Tragedy has breached their generational line far too soon, and they are shell-shocked. The outpouring of love and grief from our friends comes in part from the recognition that this is every parent’s nightmare. Losing one’s child is unthinkable, unimaginable, unendurable. It happens, of course. Too often, actually. That club has more members than we ever knew. Several have reached out to me to say so, and to offer support and guidance. But for so many, our loss is a terrifying echo of their deepest unspoken fear.

Another truth: After Alex’s diagnosis in March of 2021, I found myself imagining the worst all the time. I couldn’t stop myself. Therapy helped some, but not completely. I lived with the constant dread of this ending, with the unrelenting awareness of the odds against her, of the near inevitability of her decline. Unimaginable? Hardly.

These days, I’m often asked, “How are you doing?” I don’t know how to answer. My emotions are in constant flux. At times I feel okay, and I can see a way forward. Other times I feel numb. And still others I am as fragile as spring ice. One wrong step and I’ll shatter. This is normal, I know. Grief is not linear. It can’t be prescribed, and while breaking it down into stages might appear to clarify the maelstrom of feelings raging around me, the construct strikes me as artificial and less than helpful. I know better than to be seduced by those moments when I feel as though I have a handle on my loss. I sense that I will get there eventually, but I’m not there yet, and won’t be for a long time. I also know better than to panic when I feel out of control. That will pass as well.

The numbness, though — that bothers me. I want to feel. I want to weep for my child or laugh at a golden memory. I want to feel pain and love and loss and connection, because those keep my vision of Alex fresh and present. Numbness threatens oblivion. Numbness makes the loss seem complete, irretrievable — and that I don’t want. Not ever. Better to cry every day for the rest of my life than lose my hold on these emotions.

And so I stumble onward, trying to figure it all out, hurting and remembering and loving most of all. I don’t know when I will post again. Soon, I hope. I believe writing this has helped, and I am certain I will have more to write in the days, weeks, and months to come. Thank you for reading. Thank you for your sympathy and friendship, and also for your continued patience and respect of our privacy as we attempt to find our way.

Hug those you love.

Blogging, D.B. Jackson, David B. Coe, Not at all Writing Related, Writing

Monday Musings: The Things We Care About, a #HoldOntoTheLight Post

#HoldOnToTheLight

I honestly don’t know where this post is going, and so please bear with me as I work through my tangled thoughts.

I am struck today — as I ponder a life that is both fraught and wonderful, complicated and strikingly simple, weighted with deep worries and buoyed by simple yet profound pleasures — by the oddity of the things we choose to care about minute to minute, day to day, year to year.

As many of you know, last year our daughter was diagnosed with cancer. Her initial treatments went well, her maintenance regimen has been harder to pin down and she recently had a small setback — minor, but with cancer nothing is truly minor.

I suffer from anxiety anyway, and so any change for the worse in her situation can send me into a tailspin. The truth is, lots of things, big and small, can send me into a tailspin, but I am hardly unique in that regard. And when it comes right down to it, I am not convinced my anxiety explains the emotional phenomena with which I’m grappling in today’s post.

Perhaps an example will help me clarify my topic and allow you to follow along as I muse and ponder. I find — and this is nothing new — that one moment I can be focused on my daughter’s health, or something else of equal importance and solemnity, and the next I can be completely put out by my inability to solve the day’s Wordle puzzle in four guesses instead of five. A frivolous, even absurd, example to be sure, but I offer it in all seriousness. The frivolity is kind of the point.

This has been a difficult couple of years to say the least. I often begin my morning walks mired in dark thoughts, consumed with worry about my kid, or the state of the world, or, for a long time, the persistence of the pandemic. And then I will spot a hawk along the trail, or a warbler will pop up and start to sing in plain view, and I will be filled with happiness. Fleeting perhaps, but not any less powerful for its brevity.

We can be resilient creatures, we humans. And I do think some of what I’m writing about is resilience. Part of it might be as well the simple reality that our emotions demand respite. It can be exhausting living with worry or with grief. Many of us, myself included, live with anxiety or depression or other mental health issues, and these conditions can compound that weariness. Many of us struggle to find those moments of pleasure, those glimpses of resilience.

But the fact is, our minds — or at least my mind — seem to seek out breaks from the toughest issues. How else can I explain being consumed with the threat of global climate change one moment, and truly caring who wins the Tottenham v. Manchester City soccer match the next? How can I worry about my children, or the health of my in-laws, and also care whether I solve the puzzle on my phone in the allotted sixty seconds?

Do our minds do this to preserve our sanity? Ophthalmologists tell us that we can ease strain on our eyes when sitting in front of our computers by taking a few minutes periodically to focus on something farther away. Isn’t that what our brains do, too?

Okay, so I’m nearly six hundred words in to this post, and I still haven’t figured out what the hell I want to say. I suppose I am trying to explain to myself how my own coping mechanisms work. I know that for me, constant worry is debilitating. The intrusions of the frivolous save me from myself. I care about Wordle not because it matters, but because in making it matter, I force myself to look elsewhere, to focus on something other than the hard stuff right in front of me. I allow myself the pleasure of a bird sighting — or a song well played on my guitar, or a successful photograph — because without such pleasures my world would be a bleaker place.

I suppose I am merely describing distractions, which all of us have. And perhaps what I’m actually doing, in public, and in a roundabout way, is giving myself permission to be distracted. Because, I have to admit, in the depths of my legitimate worries, I am embarrassed by the trivial things I care about. Resilience. Distraction. Fun. Pleasure. Joy. When we confront serious matters — including life and death matters — these things can feel wrong, like violations of self-imposed gravity. How dare I take pleasure in a new music CD when my kid is dealing with cancer. How dare I care about a soccer match, or a Wordle puzzle, when the world is in crisis.

The thing is, though, without all those pursuits that delight and distract and bring joy, why does anything else matter? We help no one when we deny ourselves simple pleasures. Because they not only are born of resilience, they also promote it. And without resilience we are of no use to the people who need us, to a world that demands our attention and our compassion.

Perhaps this post is one long rationalization, a way to convince myself it’s okay for me to have fun now and then. But I think it’s more. In the depths of difficult times, I believe we need to remind ourselves to take joy when and where we can. Life is hard. We face no shortage of excuses to be sad or frightened or angry. Our humanity demands we also create opportunities to find happiness and peace, even if just for a short while.

Wishing you wonderful week.